Monthly Archives: April 2018

AFTD Conference – The Gift of Connections

Standing on the wooden platform of the Chicago “L,” I wondered if I were strong enough to face the AFTD Annual Conference. AFTD is the non-profit for Frontal Temporal Degenerative diseases.

Over 350 people from 32 states and multiple countries were in attendance at the conference.  One thread connected us all – FTD.  Continue reading

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Beach Trip – Got Your Back Kid

After three days in Delray Beach at my father’s house for spring break, our family finally made our way to the local public beach. It was a sunny but very windy day. My middle son, Matthew, noted the wooden sign … Continue reading

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FTD Genetic Link – Live Your Life Every Day

A friend asked me recently, “What is your greatest fear in life?” Without hesitation, I choked out, “That my children will get this crappy disease.” My body curled into a fetal position, and I cried. My husband has a rare, … Continue reading

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Sucker Punched – Getting Our Wills

Woke up in a great mood.  Easter was over, and it had been a relaxing day.  My three sons were returning to school from spring break. After some procrastination (mainly to ensure our huge house transactions were complete), I scheduled … Continue reading

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