Monthly Archives: April 2018
Standing on the wooden platform of the Chicago “L,” I wondered if I were strong enough to face the AFTD Annual Conference. AFTD is the non-profit for Frontal Temporal Degenerative diseases.
Over 350 people from 32 states and multiple countries were in attendance at the conference. One thread connected us all – FTD. Continue reading
After three days in Delray Beach at my father’s house for spring break, our family finally made our way to the local public beach. It was a sunny but very windy day. My middle son, Matthew, noted the wooden sign … Continue reading
A friend asked me recently, “What is your greatest fear in life?” Without hesitation, I choked out, “That my children will get this crappy disease.” My body curled into a fetal position, and I cried. My husband has a rare, … Continue reading